Saturday, January 25, 2014

From Mary Jo

Another winter storm, Rosey? We are in the midst of inversions with snow forecast for this afternoon. It has spit a bit of tiny kernels, no flakes yet. Another week of gray, freezing weather is in store. Wish it would warm up enough to snow... And, have finally acclimated. Fred, the cat, wears a fleece coat to sleep each night even though he is inside. We didn't tell him it is for a dog... Shed many tears this week as hospice is now involved in DH's care. Bittersweet times.. My worry was for naught as they've assumed so many problems. A CNA comes 3x weekly to bathe and dress him. That was very difficult as he is a foot taller than I am. A nurse comes 3x a week to check him. She reports to his primary doctor. His meds are all streamlined and provided. (He no longer takes many of them.) Equipment is provided as needed. Someone is on call and will come 24/7. That is the very best thing. His last 2:00 am fall left me trying bring him round ane assessing the damage. Knew he would not go to emergency if the paramedics came. Now it is solved. Someone will come immediately to help. He is having tiny strokes that determine how his arms work, if he can walk, his thinking processes... One day they are awful and he will sleep 20 of 24 hours. The next he is up and moving about most of the day. His attitude is super. He is thankful for everything at this stage. A quilt friend volunteered to sit here an hour each week, how great is that? The 4 grands are adults and live nearby so they will help, too. My 3 kids live 5-6 hours north and one works on the Bering Straits. They give moral support and can fly in if necessary. It will work out, have faith in that. Am working on a grief quilt that is different than those done previously. Before, I centered a large block with the person featured. Then surrounded it with small blocks showing 'snapshots' of their lives. This one is a processing quilt for the duration. Used blue/teal scraps from two grand's quilts to make 12 slabs, then cut them diagonally and placed them off kilter on the background which is a water fabric. At that point the working title was 'Coming apart at the seams'. It is changing and now has a peachy coral center. Will share more as it develops. Blessings, MaryJo

6 Comments:

At January 25, 2014 at 8:15 PM , Blogger Sara in Florida said...

Mary Jo- so sorry you have to go through this.
Hospice is a wonderful type of orginazation. Thus said, they are different from state to state and Co. to Co. I wish my Mom was on a different one, but at least she is with one. She has a wonderful CNA- Asia, and nurse Bonnie who are so nice to her.
Sara in Fla.

 
At January 26, 2014 at 3:45 AM , Blogger Laura in IA said...

Mary Jo, My thoughts and prayers are with you as you take this journey. I am glad that you have help and support. I think it is marvelous that you can use your quilting in your grieving process. LaurainIA

 
At January 26, 2014 at 3:52 AM , Blogger Fran (Sth Aust) said...

Mary Jo, thinking of both you and DH as you go through this hard time. Thank goodness for hospice and the support you are getting. Fran

 
At January 26, 2014 at 7:34 AM , Blogger RoseyP said...

Mary Jo, when your email came into my inbox and I read it before posting it to the Chat Board, I could feel myself sinking into a very unhappy feeling. Death is the final insult of living. To have to suffer through such illness and pain at the end, another insult. But as I read it through, I began to feel grateful for the wonderful support your DH is having at this time of his life and to read of his accepting attitude. And of such sadness in knowing what lies ahead for you. It's in these postings that this Chat Board can be supportive and a place to share with others. Having Hospice come into your home 24/7 has to be a huge relief and support for you.
Rosey

 
At January 26, 2014 at 3:09 PM , Blogger Marion in NZ. said...

Thank you Mary Jo, for sharing your journey with us here. Most of us know that the last years are difficult and most of us don't yet know what shape they will take. If we feel free to share here we will get support and encouragement. So pleased to hear that the Hospice is meeting so many needs. Warm hugs..

 
At January 26, 2014 at 4:37 PM , Blogger Doris W. in TN said...

Mary Jo - You and your DH are in my thoughts and prayers. Hospice is a wonderful organization and so helpful in navigating Medicare as well as the medical and funeral stuff. It is nice that you have Hospice in your area to help DH and you during this stage of his life. (((Hugs)))

 

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